The collection documents 43 meetings of the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research held between 1974 and 1978 and includes briefing books, subject files, and transcripts from these meetings. The Executive’s Branch of the Department of Health, Education, and Welfare established the group in 1974 and it is considered one of the first modern bioethics commissions.
The collection consists of records of the U.S. Department of Health, Education, and Welfare's Ethics Advisory Board, which existed from 1978 to 1979.
The collection contains transcripts of the meetings held by the State of New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care, dating from 1986 to 1992. Many of these meetings were held as public hearings as part of different ad hoc working groups looking at specific issues such as living wills and new reproductive technologies.
The collection consists of records related to the National Heart Transplantation Study, including the project proposal, advisory committee meeting minutes, a description of the study (with selected readings), published updates, questionnaires, and forms. It also includes forms related to the National Kidney Dialysis and Transplantation Study.
The Human Fetal Tissue Transplantation Research Panel was established in 1988 as an ad hoc consultant group to the Advisory Committee of to the Director of the National Institute of Health. The collection contains records related to the Panel, including meeting transcripts, briefing books, clippings, the Research Panel's final report, and other documents.
The National Bioethics Advisory Commission (NBAC) was established by President Bill Clinton in October 1995. This collection contains meeting materials and reports produced by NBAC, as well as the Commission's website.
The collection consists of records related to the President's Biomedical Research Panel (PBRP), including its final report (with Appendix A and C), the Analysis of Selected Biomedical Research Programs (2 volumes), and summary meeting minutes (1975-1976). The records belonged to Kathryn Arnow, who was a health policy analyst and Chief of the Program Planning Branch in the office of the Director of the National Institutes of Health in the 1970s.
The collection consists of materials on library ethics and medical experimentation on prisoners created by Mary Lee Bundy. Bundy (1927-1987) was a professor at the University of Maryland, College Park, College of Library and Information Services. She was also one of the officers of Urban Information Interpreters, Inc., a non-profit organzation that sought to make information services accessible to the urban poor.
The collection contains materials for the NIH's Ethical and Regulatory Aspects of Human Subject Research course. It includes the syllabus and the readings for the course. The course was presented by the the NIH's Department of Clinical Bioethics at the Warren G. Magnuson Clinical Center from October-November 2002.
The Pellegrino Center for Clinical Bioethics Records primarily consist of conference, meeting, and event files. They also include annual reports, newsletters, budget files, and reports. In addition to documents, the records include photographs and computer disks that contain digital images and audio recordings (MP3).
The collection contains records of course, lectures, and events held by the Kennedy Institute of Ethics from 1975 to 2014. It primarily consists of promotional materials, but it also includes some administrative records for certain courses and lectures.
The collection primarily consists of interviews conducted by James H. Jones with medical professionals who were responsible for the care of David Vetter. Vetter suffered from severe combined immunodeficiency (SCID) and was popularly known as the "Bubble Boy." The interviews were conducted in 2001 for a book that was ultimately not completed. Additionally, the collection contains audiovisual materials and photographs related to Vetter.
The collection documents the work of the Advisory Committee on Human Radiation Experiments (ACHR). It includes meeting briefing books, drafts of the final report and related records, background materials on experiments, and correspondence of ACHR Executive Director Dan Guttman. Meetings were held between 1994 and 1995, and the collection includes copies of background materials dating back to 1900.
The collection consists of materials for the Ancillary-Care Obligations of Medical Researchers Working in Developing Countries Workshop (October 2006). The workshop was sponsored by Georgetown University's Reflective Engagement Initiative with additional support from the University's Department of Philosophy, the Kennedy Institute of Ethics, and from the PhRMA Foundation. Materials include schedules, biographies, and handouts.
