Found in 4 Collections and/or Records:
Ancillary-Care Obligations of Medical Researchers Working in Developing Countries Workshop Collection
The collection consists of materials for the Ancillary-Care Obligations of Medical Researchers Working in Developing Countries Workshop (October 2006). The workshop was sponsored by Georgetown University's Reflective Engagement Initiative with additional support from the University's Department of Philosophy, the Kennedy Institute of Ethics, and from the PhRMA Foundation. Materials include schedules, biographies, and handouts.
The collection primarily consists of interviews conducted by James H. Jones with medical professionals who were responsible for the care of David Vetter. Vetter suffered from severe combined immunodeficiency (SCID) and was popularly known as the "Bubble Boy." The interviews were conducted in 2001 for a book that was ultimately not completed. Additionally, the collection contains audiovisual materials and photographs related to Vetter.
The collection contains transcripts of the meetings held by the State of New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care, dating from 1986 to 1992. Many of these meetings were held as public hearings as part of different ad hoc working groups looking at specific issues such as living wills and new reproductive technologies.