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Showing Collections: 1 - 18 of 18

Acadia Institute Bioethics Interview Collection

 Collection
Identifier: BRL-011
Overview The collection consists of oral history interviews with prominent bioethicists and other individuals associated with the field conducted by Renée C. Fox and Judith P. Swazey for the Acadia Institute's Project on Bioethics in American Society. In 1997, the Acadia Institute began a multi-year study of bioethics in American society. As part of this project, Renée C. Fox, a sociologist, and Judith P. Swazey, a historian, conducted interviews with a number of promiment bioethicists and other...

Advisory Committee on Human Radiation Experiments Records

 Collection
Identifier: BRL-008
Overview The collection documents the work of the Advisory Committee on Human Radiation Experiments (ACHR). It includes meeting briefing books, drafts of the final report and related records, background materials on experiments, and correspondence of ACHR Executive Director Dan Guttman. Meetings were held between 1994 and 1995, and the collection includes copies of background materials dating back to 1900.

Bioethics Research Library Archives Audiovisual Collection

 Collection
Identifier: BRL-019
Overview The collection consists of audiovisual recordings related to bioethics, the bulk of which are recordings of lectures delievered at the Kennedy Institute of Ethics (KIE). This includes the KIE's Intensive Bioethics Courses and Advanced Bioethics Courses. The recordings are in a variety of formats, including audio cassettes, compact discs, DVDs, micro cassettes, VHS cassette tapes, 1/4" open reel audio, and other formats.

Biomedical Ethics Advisory Committee Records

 Collection — Box: 1
Identifier: BRL-013
Overview The collection consists of records related to the Biomedical Ethics Advisory Committee (BEAC). BEAC was formed in 1987 to counsel the congressional members of the national Biomedical Ethics Board on ethical issues that arise in the delivery of healthcare and biomedical research.

Edmund D. Pellegrino Papers

 Collection
Identifier: BRL-007
Overview The collection contains the papers of Dr. Edmund D. Pellegrino, dating from 1943 to 2017. It primarily documents his contributions to the field of bioethics, particuarly as an educator and administrator at Georgetown University.

Human Embryo Research Panel Records

 Collection — Box: 1
Identifier: BRL-012
Overview The collection consists of the proceedings of meetings held by the National Institute of Health's Human Embryo Research Panel, dating from February 1994 to June 1994. The Human Embryo Research Panel was established to provide the Director of the National Institutes of Health (Harold Varmus) with recommendations regarding human embryo research and guidelines for federal funding of such research.

Human Fetal Tissue Transplantation Research Panel Records

 Collection — Multiple Containers
Identifier: BRL-010
Overview The Human Fetal Tissue Transplantation Research Panel was established in 1988 as an ad hoc consultant group to the Advisory Committee of to the Director of the National Institute of Health. The collection contains records related to the Panel, including meeting transcripts, briefing books, clippings, the Research Panel's final report, and other documents.

International Genetics Survey Statistical Summary Data Notebook

 Collection — Box: BRL Shared 001, Folder: 6-7
Identifier: BRL-017
Overview The collection consists of statistical summary data for sixteen countries derived from a survey on ethical problems faced by medical geneticists. The survey was conducted by John C. Fletcher of the National Institutes of Health in 1986. The data was used in a study published in 1989 as Ethics and Human Genetics: A Cross-Cultural Perspective. The collection also includes an explanatory letter and a copy of the questionnaire.

Kennedy Institute of Ethics Scrapbooks

 Collection — Box: 1
Identifier: BRL-021
Overview The collection consists of three scrapbooks of clippings relating to the Kennedy Institute of Ethics, dating from 1971-1974.

National Bioethics Advisory Commission Records

 Collection
Identifier: BRL-014
Overview The National Bioethics Advisory Commission (NBAC) was established by President Bill Clinton in October 1995. This collection contains meeting materials and reports produced by NBAC, as well as the Commission's website.

National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research Records

 Collection
Identifier: BRL-001
Overview The collection documents 43 meetings of the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research held between 1974 and 1978 and includes briefing books, subject files, and transcripts from these meetings. The Executive’s Branch of the Department of Health, Education, and Welfare established the group in 1974 and it is considered one of the first modern bioethics commissions.

National Heart Transplantation Study Records

 Collection
Identifier: BRL-009
Scope and Contents The collection consists of records related to the National Heart Transplantation Study, including the project proposal, advisory committee meeting minutes, a description of the study (with selected readings), published updates, questionnaires, and forms. It also includes forms related to the National Kidney Dialysis and Transplantation Study.

New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care Records

 Collection
Identifier: BRL-004
Overview The collection contains transcripts of the meetings held by the State of New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care, dating from 1986 to 1992. Many of these meetings were held as public hearings as part of different ad hoc working groups looking at specific issues such as living wills and new reproductive technologies.

Presidential Commission for the Study of Bioethical Issues Records

 Collection
Identifier: BRL-016
Scope and Contents The collection contains the records of the Presidential Commission for the Study of Bioethical Issues. These include meeting materials (agendas and briefing books), project reports and background research files, educational materials, and the Commission's website. The website includes a wide variety of content related to the Commission, including sections on their meetings (agendas, transcripts,...

President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research Records

 Collection
Identifier: BRL-003
Overview The collection documents 28 meetings of the President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research held between 1980 and 1983. It includes briefing books, subject files, meeting minutes/transcripts, and other documents related to the Commission's work. This congressionally mandated group was formed in 1978, succeeding the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. It worked independently...

President’s Council on Bioethics Records

 Collection
Identifier: BRL-015
Overview The collection contains the records of the President's Council on Bioethics (PCBE) dating from 2001 to 2009. It includes meeting briefing books and an unpublished draft of a report titled Organ Transplantation: An Ethical Inquiry by the President's Council on Bioethics (June 2009). The PCBE's website is included as part of this collection. The website includes meeting agendas,...

Robert Cook-Deegan Collection on the Human Genome Project

 Collection
Identifier: BRL-006
Overview The collection consists of research materials on the Human Genome Project (HGP) collected by Robert Cook-Deegan. It includes correspondence, reports, meeting materials, and oral histories that document the early stages of the HGP. These materials were assembled while Cook-Deegan was authoring his book The Gene Wars: Science, Politics, and the Human Genome. Select portions of the collection have been...

U.S. Department of Health, Education, and Welfare. Ethics Advisory Board Records

 Collection
Identifier: BRL-002
Overview The collection consists of records of the U.S. Department of Health, Education, and Welfare's Ethics Advisory Board, which existed from 1978 to 1979.

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  • Repository: Bioethics Research Library Archives X

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Subject
Bioethics 14
Medical ethics 14
Medical policy 12
Medicine -- Research 9
Genetics -- Moral and ethical aspects 5
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Names
Kennedy Institute of Ethics 3
Pellegrino, Edmund D., 1920-2013 3
Walters, LeRoy 3
Cook-Deegan, Robert M. 2
Advisory Committee to the Director, National Institutes of Health. Human Embryo Research Panel 1